Amyloidosis Clinical Resources 1.7

The "Amyloidosis Diagnosis and Treatment App" is a valuable resource designed specifically for healthcare professionals navigating the complexities of amyloidosis, which encompasses a range of rare diseases including light chain (AL – kappa/lambda), transthyretin (hereditary, ATTR), secondary (AA), and wild-type forms. This app offers a succinct yet comprehensive overview of the disease, alongside interactive tools that facilitate earlier diagnosis and timely therapeutic interventions.

Developed by Borm Bruckmeier Publishing in collaboration with the Amyloidosis Research Consortium, the app caters to practicing physicians, residents, and other professionals involved in the diagnosis and management of amyloidosis. Its emphasis on clinically relevant information enhances its utility as an educational tool.

Key features include:

• Thorough descriptions of the most commonly encountered types of amyloidosis
• Detailed clinical presentations
• Identification of signs and symptoms typical of amyloidosis
• Guidance on differential diagnoses
• Components of the diagnostic workup, including laboratory tests, biopsies, and genetic testing
• A range of treatment options such as stem cell transplants, disease-modifying medications, clinical trials, and novel agents
• Directories of core treatment centers
• Current information on available clinical trials
• A wealth of resources for patient outreach that includes:
• • Informative foundations and websites
  • Support group information (both US and international)
  • Directories of treatment centers (US and international)
  • Access to educational webinars, disease pamphlets, and guides
  • Financial assistance options for medications and travel for treatment
  • Resources tailored for caregivers